Showing posts with label maggie's. Show all posts
Showing posts with label maggie's. Show all posts

Monday, 24 September 2012

I can turn you inside out

Last week started out promisingly enough, with a relatively uncomplicated call from the district nurse, a lovely visit to see Caro and her Maine Coons, including teeny-tiny mega-cute kittens, and a (again, relatively) pleasant trip to chemo - many chatty ladies in attendance this week; I don't get the full benefit of the chat, since I lapse into a coma as soon as they show me the Piriton, but I can hear it going on around me, and it's better than sitting in stony silence. And I was awake while nurse Debbie was holding forth on how the Fifty Shades trilogy ("I'd started, so I had to finish," she said) would make one decent, reasonable-length book if they cut out all the sex scenes. Although even so, I think she was being too kind.

Then I was sick on Tuesday evening. Violently sick. How sick? See title. Other stuff too, but I'm not going into that. It was all most unpleasant, to the point that I wondered whether we should contact the triage team at the Churchill - but Judy said they'd probably just tell us to call the out-of-hours doctor, and you know how well that works, so we didn't.

And that was pretty much it for the rest of the week. I did manage to drag myself out of bed on Friday, to keep my counselling appointment at the Maggie's Centre and talk to a very helpful and efficient lady about applying for Disability Living Allowance, but even so they had to do most of the talking.

I really have trouble considering myself disabled, by the way. Okay, I can barely walk as far as the corner shop, and I'm asleep something like 18 hours a day, but nevertheless ... But if that's the label I have to wear to get the benefits I need, then I suppose wear it I must.

I'm never that sick after chemo, either. I'm never sick at all after chemo. The Carboplatin used to upset my stomach occasionally, thereby necessitating emergency stops at Sainsbury's in Kidlington (they have customer toilets, I didn't just poo in the car park), but all the Taxel usually does is make me tired. Tireder. This was more like food poisoning; but, on the other hand, it's the second time it's happened - the first was when Judy was away and I ended up sending out pleas for help to the internet, pleas that went unanswered as the internet, unlike Faron Young, is asleep at four in the morning - so I don't know.

Nothing new there. I don't know anything much. Certainly nothing useful.

This week? Well, so far this morning my sister-in-law's birthday present has failed to arrive, there was a wet patch on the doormat under the front door (the cats? But the cats are usually so good), and I had a letter from the Inland Revenue telling me I owe them £150. Also the car is leaking coolant as though there were no tomorrow, and we have to go down to Bristol at the weekend.

I do not think I like the look of this week.

Thursday, 13 September 2012

Mamma mia!

My mother died two years ago today.

Before I say anything else, I should explain that she was 93 years old, in reasonably good health, still lived in her own house, had relatively recently, thanks entirely to my sister's tireless efforts, agreed to have both a cleaner and a carer, and, so far as anyone can tell, died peacefully in her sleep. We should all only have it so good.

Do I miss her? I wish I could say yes, but I really don't. I don't miss the monthly duty visits, two agonising hours of sitting in her living room trying desperately to spark a conversation or find any point of mutual interest - or, in my case, trying to get her to hear me at all; she either couldn't, or pretended she couldn't. I don't miss the constant worry, even after she'd agreed to have help about the house, that she might fall, or someone might break in, or ... I don't know; all the things you do worry about with very old ladies. I certainly don't miss the mess and the smell - yes, again, even after she'd agreed to have help. I used to clean as best I could while I was there, but it was never enough. And we couldn't, in sheer self-preservation, have visited her any more often than we did.

It is a little odd to think that her house, as it was, is gone - either demolished or renovated, I don't know which, but you certainly couldn't have moved straight in there the way that it was. But, in a way, that hardly matters: it still exists in my head, unchanging as it was over the 30-some years my parents, then just my mother, lived there. The paperback books, shelved in no particular order, all tilted to one side or the other and, apparently, never touched; the shelf of ornaments they'd had ever since my childhood - the Scandinavian painted horse, the ginormous purple brandy balloon, the horrid Aborigine head that used to frighten me when I was a kid; the hugely expensive Bang & Olufsen stereo unit that, again, had been untouched in all the time they lived there; my father's wretched collection of ornamental bells; the windowsill with its proud display of dead flies and photos of every one of my parents' children and grandchildren except me ... It's all still there, and I don't think it will ever go away.

What I do miss is somebody who would give love unconditionally: who would always be there with a hug, an understanding word, a cup of tea, a shoulder to cry on. But I never had that - none of us did. That wasn't who my mother was. It was probably very good for us, and extremely character-building. Still, sometimes I think I could have done with a little less character and a lot more sympathy. Who knows? Either way, ain't never gonna happen.

I wonder how my mother would have dealt with cancer? I suspect she would have treated it much as she dealt with Hitler: with the utmost contempt. She'd've had anything cut off and/or out that needed to be cut, gone through treatment with dogged stoicism, and probably beaten the crap out of the thing. I don't need to wonder how she would have dealt with me having cancer. She would have found a way to make it my fault.

So, there you are. She was a difficult and not a very likeable woman, but she was an individual, and she took very little nonsense from anyone. You could, I suppose, do worse. And she's the only mother I'm ever going to have.

I myself am at present being far less stoic. I had two weeks in between the end of my fourth and the beginning of my fifth cycle of Taxel, because of the neuropathy in my fingers. I was almost starting to feel human by the beginning of this week, although still so tired that a walk down the main street in Bicester was enough to wipe me out, but one dose of Taxel and I'm back to a state of general uselessness, unless anyone knows of a good use for sleep. Judy and I have just been to Brackley to shop, and I was too wobbly to drag myself around Tesco. I've been lying out on the bench in the garden, but it's starting to get too cold for that. Winter is going to be a drag ...

I had a bit of a scare on Monday morning, when I woke with a temperature of 102 (Fahrenheit, that is, of course; else I wouldn't be typing this now). I don't know what caused it; I was together enough to do all the things I needed to do - phone the triage team for advice, get an emergency appointment with my GP, call my brother and ask him not to visit (woe!), contact the district nurses - and, by the time I got to the GP's, things were back to normal. But something definitely happened. I just don't know what, and I suppose we never shall find out.

The main thing is, I was well enough for chemo on Tuesday. I had to throw a bit of a tantrum in there; because I'd had to put off the district nurse the day before, my PICC line dressing hadn't been changed, and the DTU nurse tried to tell us we'd have to get the district nurse in to do it the next day because they (the DTU) were too busy. Cue tantrum. She changed the dressing. I win!

The moral of this story is, save your tantrums for when you need them. Most of the time I am very good and quiet, and just let them get on with it.

It didn't help that I was tired before we went into the DTU, having spent the previous hour talking to a woman from the Maggie's Centre. I don't say this wasn't useful; just that I can only do one thing per day, and we really do need to remember this. The upshot is that I have an appointment with a counsellor next Friday, so we shall see how that goes.

My mother would have been disgusted. She would have had no truck with what she would have called 'trick-cyclists'. However, she's not here. I am. So, STFU, Mother!

Bless you, dear, wherever you may be. How I hope there is not a hereafter.

Thursday, 1 September 2011

I started early, took my dog

I didn't really take my dog. I don't have a dog. And it wasn't that early, either, I got up around 8.30. But I was really tired, and could have stayed in bed all morning.

Instead, I went to give a blood sample at the surgery - which went off without mishap, this time - and then Judy drove me to the Churchill to talk to the people at the Maggie's Centre about benefits. That was a bit of a waste of time: it looks as though I have too much in the way of savings to qualify for any income support - not enough to live on, though, ironically - and, because of our irregular living arrangement, trying to claim housing benefit would just stir up a can of worms. Or open a hornet's nest. One or the other.

Maggie's Centre is in a rather dilapidated Portakabin and a bit depressing; it had something of the air of a battered women's shelter about it. I suppose it does its best. As do women's shelters, who don't tend to have money to spare on cosmetic enhancements.

We had to walk all the way through the Churchill to get to Maggie's, which is an awfully long way, and I was exhausted by the time we got there. And then we tried to walk back round the outside, which took even longer. And that was me done for the day.

Tim phoned again tonight - very briefly, but still: it's nice that he cares. I don't have that much in the way of family.

Many friends, though, so I am not allowed to whinge. In fact, I am never allowed to whinge, unless there is something good and worth whingeing for. Since I'm feeling quite a lot better today than I have over the past few days, there isn't. So I shan't.

"I am very tired" is merely a statement of fact, not a whinge. So there.